× Current Issue Archive Submit Article
Conflicts of Interest Copyright and Access Open access policy Editorial Policies Peer Review Policy Privacy Statement Publishing Ethics
Editor in chief Associate Editors Advisory Board International Editors
Contact Us About Us Aim & Scope Abstracting And Indexing Author Guidelines Join As Editor

Predicting factors impact to quality of life of school age Thalassemic children in Indonesia


, , ,

Abstract

Thalassemia is a major genetic blood disorder that considered a public health problem in Indonesia. While significant advances have been made in the clinical management of thalassemia children over the past few decades, our knowledge of the factors affecting the quality of life of thalassemic children is limited and some previous studies have shown contradictory results. The study aimed to analyze factors impacted to the QOL of school-age thalassemic children in Indonesia. A correlational analytic with a cross-sectional approach was conducted at a district hospital in Sumedang Indonesia from May to July 2017. The PedsQL generic core scale was used to assess 55 school-age thalassemic children with thalassemia major. Data were analyzed bivariate by using Pearson and Spearman Correlation Test and multivariate analysis used multiple linear regression to determine the factor that most impacting the QOL thalassemic children. The findings showed that the average of QOL of school-age thalassemic children was 66.54+12.85. There was a significant correlation between QOL with pre-transfusion Hb level (p=0,018, α=0,05), frequency of transfusion (p=0,000, α=0,05), nutrient status (p=0,000, α=0,05), family support (p=0,004, α=0,05), friends support (p=0,000, α=0,05) and adherence to iron chelation therapy (p=0,016 and α=0,05). Transfusion frequency is the most predicting factor that influences the QOL of school-age thalassemic children. It is suggested that effective transfusion scheduling, family and friends support, and providing adequate education for parents are essential in improving QOL thalassemic children in Indonesia.


How to cite this article:
Vancouver
Mediani HS, Nurhidayah I, Lusiani L, Panigoro R. Predicting factors impact to quality of life of school age Thalassemic children in Indonesia. J Adv Pharm Educ Res. 2021;11(1):81-5. https://doi.org/10.51847/65grcUX
APA
Mediani, H. S., Nurhidayah, I., Lusiani, L., & Panigoro, R. (2021). Predicting factors impact to quality of life of school age Thalassemic children in Indonesia. Journal of Advanced Pharmacy Education and Research, 11(1), 81-85. https://doi.org/10.51847/65grcUX
Citation Formats:


Contact Meral


Meral Publications
www.meralpublisher.com

Davutpasa / Zeytinburnu 34087
Istanbul
Turkey

Email: [email protected]
Tell: +905344998991